Project: The handbook

The handbook
The handbook is designed to help solve problems and drive change that will make a meaningful difference to care for people living with heart failure.

What is The handbook of multidisciplinary and integrated heart failure care?

The handbook is designed to help solve problems and drive change that will make a meaningful difference to care for people living with heart failure. It will:

  • Provide an accessible and action-oriented view of best practice in the integrated management and multidisciplinary care for heart failure
  • Provide practical tools and models for change management aimed at patient advocates, healthcare professionals and decision makers
  • Showcase innovative solutions through case studies from across Europe
  • Provide a starting point to facilitate national policy discussions on multidisciplinary and integrated care in heart failure across the different EU
    healthcare systems.

Empowerment of patients, carers and families is vital for long-term engagement in self-care. Every person living with heart failure has a unique journey. They may have to accommodate challenging physical, psychological, professional and therapeutic adjustment.

The needs of heart failure patients are not static; therefore, there is no single optimal care journey. There are three very typical phases of heart failure: diagnosis; care and follow-up; and living with heart failure. Depending on progression of the disease, people with heart failure may have episodes that require return to acute care or enhanced medical supervision.

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Who is The handbook of multidisciplinary and integrated heart failure care for?

Since 2015, the Heart Failure Policy Network has set out to make a meaningful difference to care for people living with heart failure. In 2017–18, we aimed to provide national policy advocates with a pragmatic tool to engage decision makers in implementing integrated heart failure care. The result, The handbook of multidisciplinary and integrated heart failure care has several aims:

  • To help patient advocates and healthcare professionals communicate a shared, compelling and evidence-based policy case for change
  • To win the support of key decision makers to challenge the status quo
  • To encourage, facilitate, measure and, ideally, resource more consistent implementation of best practice.

Help us take the case for change to national governments.

Case Studies

Click the map to sort the case studies by country or view all below

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The following case studies are based on research that was conducted in 2018.
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Endorsements

The following organisations support and endorse this handbook.

Project Advisory Group

Dr Paola Antonini
Head of Clinical Research and Training, Associazione Italiana Scompensati Cardiaci (AISC) (Italy)
Dr Josep Comín-Colet
Cardiologist, Bellvitge University Hospital (Spain)
Dr Maria Rosaria Di Somma
Managing Director, AISC (Italy)
Professor Salvatore Di Somma
Sapienza University of Rome; Director Scientific Committee, AISC (Italy)
Michel Enckels
President, Mon Coeur Entre Parenthèses (Belgium)
Professor Andrzej Gackowski
Cardiologist, Jagiellonian University Medical College (Poland)
Professor Luc Hittinger
Cardiologist, Henri Mondor University Hospital (France)
Neil Johnson
CEO, West of Ireland Cardiac Foundation (Ireland)
Steven Macari
President, Association Vie Et Coeur (France)
Professor Anne-Catherine Pouleur
Cardiologist, Cliniques Universitaires Saint-Luc; President-Elect, Belgian Working Group on Heart Failure (BWGHF) (Belgium)
Yolanda Rueda
Secretariat, CardioAlianza (Spain)
Yolanda Rueda
President, CardioAlianza (Spain)
Dr Pierre Troisfontaines
Cardiologist, CHR de la Citadelle; Past-President, BWGHF (Belgium)
Professor Faiez Zannad
Cardiologist, CHU de Nancy; Director, CIC INSERM (France)

Funders

The handbook of multidisciplinary and integrated heart failure care made possible with financial support from Novartis Pharma. Additional support for the handbook launch in September 2018 was provided by Bayer AG.

As with all materials produced by HFPN, the handbook’s content is not biased to any specific treatment or therapy, and is endorsed and owned by the Network’s members, who have full editorial control. All members provide their time for free.

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